Rett Syndrome Fundraiser

A few years ago, I met a young woman named Joy at a craft event. We shared pictures of our girls over mandalas and sugar skull sketches. Mine was a senior in high school and hers just a baby. The next day I got a Facebook friend request from her. I accepted and have had a backseat to a journey that no one should ever have to take.
Joy tells the story of how she and her husband sensed something was wrong with their beautiful little girl Aubrey. How they searched for a diagnosis, while watching her lose her speech, her motor skills, all the firsts they’d seen her achieve as she passed all those baby milestones we all see our babies have.
Just as most parents are struggling through the terrible twos with their kiddos, Joy and Bob learned that Aubrey had Rett Syndrome. ( https://www.girlpower2cure.org/our-cause/what-is-rett-syndrome/ )Who had even heard about Rett Syndrome?? It affects mainly little girls and strikes about 1 in 10,000 children. It presents challenges to purposeful hand utilization, and the ability to speak, breathe, eat and walk.
I’m sure there have been moments of the deepest despair, but I’ve never seen Joy with a negative attitude. The positive energy that she pours into Aubrey and her care, and their family and her business is contagious. I admire her like no other young mom I’ve ever known, like no other people I know. I pray for them every day…that God will give them strength and healing…that God will help a cure be found…that God will renew this mom’s energy so she can love and care and fight for her girl.
October is Rett Syndrome Awareness month. Girl Power 2 Cure (www.girlpower2cure.org) is an organization that provides education, support for Rett families and helps to support research. Fat Bunny Yarn will donate half the purchase price of their colorway Somebunny<3U to Girl Power 2 Cure. Not just during the month of October, but every time someone buys it. So, if you are browsing around our site, if you buy 1 hank of yarn from us, buy Somebunny<3U. It’s a great colorway and every hank sold helps a little girl and her family fight this battle against Rett Syndrome.

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